About the APF

Click on the bold blue text below or on a topic listed on the left side of the page to read more.

The APF is dedicated to improving the health and well-being of individuals and families affected by Porphyria.

The APF:

  • Enhances public awareness;
  • Develops educational programs and distributes educational materials; and
  • Supports research to improve treatment and ultimately lead to a cure.

The APF also serves as an advocate on your behalf to other public, private, and government agencies interested in funding research and educational programs.

Our Scientific Advisory Board is made up of the world's foremost experts in porphyria management, diagnosis, and research. They have written or approved the medical information on this website.