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  • Amy Rose Burke

    Amy Rose Burke

  • Becky Thompson and her Mom

    Becky Thompson and her Mom

  • Allison Linner

    Allison Linner

  • Celeste as a young girl

    Celeste as a young girl

  • U.S. and Int'l experts

    U.S. and Int'l experts

  • Porphyria & Porphyrins Meeting, Capetown

    Porphyria & Porphyrins Meeting, Capetown

  • Dr. Manish Thapar (Protect our Future trainee)

    Dr. Manish Thapar (Protect our Future trainee)

  • Grace Warfield at the APF booth

    Grace Warfield at the APF booth

  • Lisa Kanscar with local nurses

    Lisa Kanscar with local nurses

  • A Fight Against Porphyria

    A Fight Against Porphyria

  • Sudhir K Mukergi

    Sudhir K Mukergi

  • Cheering Wendy On

    Cheering Wendy On

  • Jennie Petersen (UTMB Porphyria) and Sandia Birkhaus

    Jennie Petersen (UTMB Porphyria) and Sandia Birkhaus

  • Richard Jesker

    Richard Jesker

  • Nurse Rebecca Peek Hanging a Bag of Panhematin

    Nurse Rebecca Peek Hanging a Bag of Panhematin

  • Samples

    Samples

  • Pecimen

    Pecimen

  • Cape Town, South Africa Porphyria Team

    Cape Town, South Africa Porphyria Team

  • Marlene Brezee

    Marlene Brezee

  • In Touch Meeting November, 2004

    In Touch Meeting November, 2004

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May 04, 2013
APF Members making a difference.
Apr 26, 2013
Student Alessia Callahan Educates Classmates during National Porphyria Awareness Week
Apr 24, 2013
FDA opens new line of communication with patients…
Apr 03, 2013
Important News....
» More recent news
May 18, 2013
International Meeting of Porphyria Patients
Apr 14, 2013
National Porphyria Awareness Week
Dec 8, 2012
APF Exhibit at the American Society of Hematology. Volunteers needed.
» More upcoming events

Member Stories

Penelope Burris (Acute Intermittent Porphyria (AIP))
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APF In Touch

Become a member of the APF In Touch Network. Read more...

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