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Patients and families dealing with Porphyria may find the following websites, and the non-Porphyria related medical information in this section, useful.
Healthwell Foundation For those who have health insurance, assistance with medical co-pays and insurance premiums for Panhematin® and acute porphyria treatment. For those who do not have health insurance, call Healthwell about assistance getting insurance and paying for premiums.
* EPP patients: Dr. Micheline M. Mathews-Roth writes that "the risks from surgical lights, anesthetics and drugs are great enough that all EPP patients should wear Medic Alert bracelets, even those who have mild enough cases that they can lead quite normal lives with just a few adjustments." Please click here for more information.
* Acute porphyria patients: Wearing a Medic Alert bracelet is advisable for patients who have had attacks but is probably not warranted in most latent cases. Please click here for more information.