Additional Resources

Continuing Medical Education (CME) 

Acute Intermittent Porphyria: A View From the Trenches

Herbert Bonkovsky, MD;  Brendan M. McGuire, MD, MS;  Lisa Kehrberg, MD
CME/CE Released: 09/25/2014; Valid for credit through 09/25/2015

This activity is intended for primary care physicians, emergency medicine physicians, gastroenterologists, obstetricians/gynecologists, hematologists, nurses, and other healthcare professionals who may encounter patients with acute porphyrias.

The goal of this activity is to improve clinicians' ability to recognize, diagnose, and initiate appropriate next steps for patients with acute intermittent porphyria.

Upon completion of this activity, participants will be able to:

  1. Identify clinical signs and symptoms of an acute porphyria attack
  2. Select appropriate management options for patients with acute intermittent porphyria

    Go to CME website


    Telemedicine Consultations

    If you need to consult with a Porphyria specialist and are unable to do so because of the distance to a Porphyria center, you now have the opportunity to consult electronically.

    A Porphyria specialist and member of the APF Scientific Advisory Board, Dr. Karl Anderson, will be consulting with Porphyria patients via a telemedicine service from the General Clinical Research Center of the University of Texas Medical Branch at Galveston.

    To access this service, you need to first locate a video teleconferencing facility in your community. These facilities are often found in libraries, businesses, universities and research centers. Unfortunately, neither the APF nor Dr. Anderson can provide you with a list of facilities with teleconferencing capabilities. Next, call Dr. Karl Anderson (409) 772-4661 to arrange for an appointment and to find out what information you might need to have ready prior to the telemedicine visit.

    During the teleconference, Dr. Anderson will discuss your case with you just as he would during a regular office visit. This project was funded in part by a grant from the American Porphyria Foundation.


    Physician Information Kit Available

    Upon request, the APF will send a comprehensive physician education packet on the acute porphyrias to physicians. It includes educational materials on the diagnosis and management of the acute porphyrias; information on biochemical and genetic testing; Panhematin treatment for the acute porphyrias; and a recent article from the Annals of Internal Medicine on diagnosis and management of the acute porphyrias.  Please call our office at 713-266-9617 to order the kit.

    In addition, the APF will also send information on PCT and EPP to physicians upon request. Please call our office at 713-266-9617 to order the packet.

    These packets are delivered via USPS, for physicians only.


    Porphyria Slide Set

    An Essential Resource and Teaching Tool

    This PowerPoint slide set provides valuable information about porphyria, including discussion covering porphyria types, causes, diagnosis, and treatment protocols. It also includes vital information focusing on Panhematin® (hemin for injection).

    Download here