News

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Apr 18, 2014

Dear Members,

National Porphyria Awareness Week is just around the corner, April 20-26! We continue to share the stories and events of our members who are enthusiastically promoting Porphyria Awareness in their communities.

Mar 29, 2014

Physician Dr. Lisa Kehrberg who suffers from Acute Intermittent Porphyria shares her personal experience with AIP in this video.

Mar 19, 2014

 

Dear Members,

Dr. Desnick will perform DNA testing during the patient educational meeting at Hyatt Place, West Palm Beach, FL on April 5. DNA testing will be offered for those of you who have a copy of the medical records or confirmed porphyria test results.

Jan 30, 2014

Melbourne, Australia and Baar, Switzerland, January 30, 2014

 

Jan 29, 2014

2/2/2014 Training buddies: Polly Barton Harvard Family & Friends.  

 

APF member, Polly Barton Harvard is running for EPP.  Join me, Desiree Lyon Howe, in participating in her event.  

Jan 27, 2014

 

Many exciting new services and programs have been instituted at the APF and on the APF website, http://porphyriafoundation.com.

Jan 07, 2014

Now is the time to join the many other people who are helping porphyria researchers find new treatments leading to a cure.

Jan 01, 2014

 

May each of you be Blessed with a Healthy New Year. The APF will continue to be available to you and your families. We will be implementing and help facilitate exciting new projects in the coming year to include:

Dec 23, 2013

Notice From Dr. Peter Tishler….

 

Dear American Porphyria Foundation Member:

 

Dec 19, 2013

Gary Eyster's Art Collection for sale to benefit the APF. Photographed by Lawrence Pritchard. Click on the photo to view Garys Collection or the read more (located below) to read the article.

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